This week we talked to Shawn Luna! Shawn was diagnosed with UC as an adult and it was a big surprise since he hadn't had any symptoms of it when he was younger. We talked about how quickly his UC came on, how scary it was to get diagnosed, and his struggles with pain and fatigue and to get into remission which lead to him being steroid dependent. As part of this process, his original gastroenterologist "fired" him and referred him to a IBD specialist and we talked to him about the difference in his care and how his new doctor got him into remission and helped him wean off of the steroids. Shawn was very open and honest about how he struggled with his mental health during the years when he wasn't in remission and how that affected his marriage, his parenting, and his sense of identity as a man and father. We were so impressed with Shawn's grit and positivity despite his difficult journey to remission and we love how he's used his experience to help other people struggling with IBD.
Thanks to our sponsor- Romanwell!
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Links:
– An interesting medical education module about steroids and IBD
– Crohn's & Colitis Foundation Hispanic Community Facebook Group
– A toolkit for talking to your children about your IBD- Crohn's & Colitis UK
– A toolkit for talking to your children about your IBD- IBD Clinic- University of Alberta
– Living with IBD: Pain & Fatigue– Crohn's & Colitis Foundation
– Managing Pain in IBD– Crohn's & Colitis Canada
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