This week we spoke to Barbara Cramer! Barbara has 2 children living with Crohn’s disease. You met her daughter Hannah in episode 13 and this week you’ll get to hear Barbara’s side of some of Hannah’s stories and experiences. Barbara’s children were diagnosed at different ages- one as a teen and one has an adult- and have vastly different styles in how they cope with their disease. We talk to her about how she’s handled these vastly different ways and how she’s helped both of her children navigate this new world. We talked to her about leading a support group with Hannah for families affected by IBD. We discussed the helpful and not-so-helpful things that people say when you talk about having a kid with a chronic illness, were to find accurate information about IBD, and how important it is to know that you’re not alone.
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! 😉
Links:
- Hannah’s episode!
- Ways to find support including the Power of 2 and Support groups mentioned on the show- Crohn’s & Colitis Foundation- USA
- Tools to help parents of kids with IBD– ImproveCareNow
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