This week we had so much fun getting to know Natalie Hayden! You probably know her from her very popular blog- Lights, Camera, Crohn’s: An Unobstructed View– and her Instagram account! Natalie is a journalist and worked as an on-air reporter for 3 different TV stations and was also the host of Wakeup Wisconsin all while coping with Crohn’s disease. We talked to her about what it was like to work in such a public field while coping with her disease and figuring out the right treatment. We talked to her about when she decided to go public with her disease and to become a powerhouse patient advocate. We discussed how she uses her journalist skills to create informative and accurate stories for her blog and what it’s like to engage on social media with our community. We also talked about motherhood and raising 3 small children while living with Crohn’s and what it’s like to navigate all the tasks associated with managing your disease like shots, appointments, ER visits and more with little ones. We also talked about tips that she has for other people who may be interested in getting active on social media as a patient advocate. We really enjoyed our time with Natalie and had so many more questions for her. If you don’t follow her- do it now! You’ll learn so much!
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! 😉
Links:
- Information about the PIANO study– for pregnancy and IBD while using biologics
- Resources for New Moms with IBD– Article by Natalie in Everyday Health
- IBDMoms– A community by Moms with IBD, for Moms with IBD
- Chronically Jess– resource for folks with IBD
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