This week we talked to Ashley Mann! Ashley was diagnosed with Crohn’s disease when she was 20 years old but she had been experiencing symptoms when she was in high school. We talked to her about what it was like being a competitive cheerleader with active disease. We talked to hear about what she describes as trying “every medication on the market” and navigating countless surgeries. We discussed her decision to move to a permanent ileostomy and how close she is to living with short-gut syndrome. We talked about how she’s had to learn to manage her healthcare and advocate for herself while moving frequently because of her husband’s career in the military. We also talked about what it was like to get her care in the military healthcare system and her experience with friend-of-the-show, Dr. Anish Patel. Finally we talked about the importance of making healthcare decisions that you feel are right for you even in the face of differing opinions from the people most important to you.
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! 😉
Links:
- Our episode with Dr. Anish Patel
- A video about Short Bowel Syndrome– Canadian Society for Gastrointestinal Research
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