This week we spoke to Liam Robertson! Liam was diagnosed with UC when he was a young adult but the process was lengthy and filled with times when he was not believed. We talked about what that was like to navigate the health system and his feelings on it. We discussed...
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This week we talked to Dr. Jeanne Tung! Dr. Tung is the Director of the Center for Pediatric IBD at OU Health. We talked to her helping kids transition and transfer to adult IBD care and we talk to her about her involvement in ImproveCareNow which is a collaborative made up of pediatric IBD patients, parents, and healthcare providers that works to (big surprise) improve care for kids living with IBD. We also talk to her about helping parents with kids with IBD to let go and allow their kids to start to take charge of their own healthcare.
Dr. Tung is such a passionate advocate for kids with IBD and we had so much fun talking to her.
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Links:
- Improve Care Now
- Transitioning Tool Kit from GIkids.org
- Surgery decision making tool kit from GIKids.org
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