This week we spoke to Liam Robertson! Liam was diagnosed with UC when he was a young adult but the process was lengthy and filled with times when he was not believed. We talked about what that was like to navigate the health system and his feelings on it. We discussed...
Meet Tina of Own Your Crohn's Fame!
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We were so excited to talk to Tina Aswani Omprakash this week! Tina is a powerhouse in our community and we loved hearing her IBD story and all of the awesome things she's been working on- and despite the super-sized episode, we just scratched the surface! We talked to her about her very complicated Crohn's and her other autoimmune conditions. We talked about her family history of IBD and how her culture shaped her disease journey and eventually motivated her to speak out via her popular blog called "Own Your Crohn's." After she started speaking out more publicly, more and more people of South Asian descent and even further afield started reaching out and thanking her for helping to demystify and destigmatize IBD. That prompted her to start a social media group (IBDesis) and the success of that motivated her and her team to start the South Asian IBD Alliance. We were so excited to hear about SAIA's mission and their amazing progress in such a short time.
We also talked to her about how she manages her symptoms with a team of folks including a therapist, pelvic floor physical therapist, acupuncturist, and more. Her team helps her maintain her holistic wellness as well as her disease.
We know you'll be just as riveted as we were by Tina's story and all her accomplishments.
Thanks to our sponsor- Romanwell!
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Links:
- An article on Pelvic Floor PT and IBD– American Physical Therapy Association
- Pelvic Floor Dysfunction and IBD video– Own Your Crohn's Blog/Crohn's & Colitis Foundation
- Information on Paralytic Ileus– Cleveland Clinic
- Information on Ehlers-Danlos Syndrome type 3– Ehlers-Danlos Support UK
- Journal Article on Culturally Competent Care for South Asian Patients with IBD- Journal of Crohn's & Colitis
- Journal Article- "Hospitalization Experiences and Post-Traumatic Stress in IBD: Opportunities for Change"- Authored by friends of the show- Dr. Tiffany Taft, Josie McGarva, and Tina! – Inflammatory Bowel Diseases
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