This week we talked to self-described "IBD Dinosaur" Dewey Thom! Dewey has been living with IBD for more than 40 years and has lived quite a bit of that time with a J-Pouch. We talked to him a lot about the importance of finding a community of people who understand IBD. We talk about his accidental participation in a support group and his subsequent role as a volunteer facilitator for the group. He reminisced about his memorable time as a counselor for a camp with kids with IBD and what an amazing experience camp can be for the kids and also the adults. We also talked to him about obstructions, strictures, pouchitis, and how having IBD may have shaped his career decisions. Dewey is a gem and I know you'll enjoy our conversation.
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Links:
– Information about J-Pouch surgery and possible complications– Crohn's & Colitis Foundation
– Information about J-Pouch surgery and what you need to know– UCSF Health
– Video on Pelvic Pouch and Pouch Complications– Cleveland Clinic (professional education but still quite understandable)
– Support options including support groups– Crohn's & Colitis Foundation
– Information on Camp Oasis– camp for kids with IBD- Crohn's & Colitis Foundation
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