This week we spoke to Liam Robertson! Liam was diagnosed with UC when he was a young adult but the process was lengthy and filled with times when he was not believed. We talked about what that was like to navigate the health system and his feelings on it. We discussed...
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This week we talked to Lori Plung! Lori has been living with Crohn’s disease for more than 40 years and she has been living as fully and as well as possible. She’s now been diagnosed with short gut syndrome and so we talk to her about what that is, what it’s like, and how she uses TPN to optimize her nutrition and hydration. We also talked to her about how she came to leading a support group in partnership with UPMC and the Crohn’s & Colitis Foundation and how that changed during Covid. We spoke to her about providing peer-to-peer support and the importance of community. We had such a great conversation with Lori and talked about so, so much more. I know you’ll find Lori to be the ray of sunshine that we did!
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! 😉
Links:
- Lori gets a shout-out in Tina’s episode!
- Information on short gut/bowel syndrome– Mount Sinai Hospital
- Short Bowel Syndrome pamphlet– Crohn’s & Colitis Foundation- USA
- Information on Parenteral Nutrition (TPN)- Cleveland Clinic
- Information on Lori’s Support Group
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